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David Baron: Diagnosis and Hope

Any time I’ve needed help, the IPPF has been there for me.

November 6, 2020Anna Lane

Hannah Yale: Empowerment through Community

Empowerment through community: I have often felt powerless when my dad has been sick. Three years ago though, I learned that...

October 30, 2020Patrick Dunn

Inspiring Hope: Ellen’s Story

Thanks to modern medicine, great physicians, and the IPPF, I’ve learned to live confidently and successfully with a rare and chronic...

October 21, 2020Anna Lane

Inspiring Hope: Noel’s Story

The articles on the IPPF website became my daily religion. I started reading them routinely and sharing them with other PV...

October 16, 2020Anna Lane

The IPPF Welcomes a New Executive Director

“I am delighted to join the Foundation. It is clear that the team of staff, Board of Directors, and volunteers have...

September 22, 2020Marc Yale

Rituximab to be Included in Taiwan’s National Health Insurance (NHI) Program to Treat Pemphigus Vulgaris

Several new drugs used to treat different types of cancer are to be included in the national health insurance (NHI) program...

September 9, 2020Patrick Dunn

Cabaletta Bio Receives FDA Fast Track Designation for DSG3- CAART for the Treatment of Mucosal PV

The U.S. FDA has granted Fast Track Designation for DSG3-CAART, Cabaletta Bio's lead product candidate for treatment of mucosal pemphigus vulgaris,...

May 7, 2020Patrick Dunn

Advocacy in Action

You may be aware of the IPPF’s advocacy efforts. Now, we need you to advocate, too. Your story is important and...

February 25, 2020Rebecca Strong

Cabaletta Bio Announces FDA Orphan Drug Designation for DSG3- CAART for the Treatment of Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for patients with B...

February 17, 2020Patrick Dunn

Positive Proof-of-Concept Data for Efgartigimod in Pemphigus Vulgaris

23 patients were evaluated for efficacy in an adaptive Phase 2 trial aiming to establish optimal treatment regimen argenx, a clinical-stage...

January 5, 2020Patrick Dunn

Phase III PEMPHIX Study Shows Genentech’s Rituxan (Rituximab) Superior to Mycophenolate Mofetil in Patients With Pemphigus Vulgaris

Genentech, a member of the Roche Group, announced data this week from the Phase III PEMPHIX study evaluating the efficacy and...

October 15, 2019Patrick Dunn

Cabaletta Bio Receives IND Clearance from FDA to Initiate First Clinical Trial of DSG3-CAART in Patients with Mucosal Pemphigus Vulgaris

Cabaletta Bio, Inc., a clinical-stage biotechnology company focused on the discovery and development of engineered T cell therapies for the treatment of...

October 4, 2019Patrick Dunn

Linda’s Still Standing (Patient Journey Series #8)

The IPPF conference was the light and guide that walked us through a very dark tunnel. A tunnel we would’ve walked...

September 27, 2019Patrick Dunn

Minatallah Finds Her Role as a Dental Student (Patient Journey Series #7)

We were under the impression that dentists don’t actually play a role in these stories, we just refer them to a...

September 19, 2019Patrick Dunn

Toby’s Luck (Patient Journey Series #6)

Having excellent care and support (and even an infusion center) right here in my neighborhood gives me a sense of security...

September 12, 2019Patrick Dunn

Fred’s Perspective: Connecting with Other Patients (Patient Journey Series #5)

Just spending time with people who knew exactly what I was going through, who knew the...

September 6, 2019Patrick Dunn

Kathleena Finds Strength as Both a Patient and a Doctor (Patient Journey Series #4)

I had never told anyone except my close family that I had an autoimmune disease. I hid it away like a...

August 29, 2019Patrick Dunn

Mei Ling’s Story (Patient Journey Series #3)

I remember what it was like for me when I was first diagnosed with PV, so I can empathize with the...

August 22, 2019Patrick Dunn

Rudy Takes Control (Patient Journey Series #2)

Patient Journey Series, Story 2: Rudy Connects with the IPPF. "My Peer Health Coach became a special person that I was...

August 15, 2019Patrick Dunn

Halima’s Diagnosis (Patient Journey Series #1)

Welcome to the Patient Journey Series: Story 1, Halima's Diagnosis. "My symptoms started at the beginning of April 2018. My mouth...

August 8, 2019Patrick Dunn

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What are Pemphigus and Pemphigoid
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The International Pemphigus & Pemphigoid Foundation’s most important objectives are to provide patients and doctors worldwide with information about pemphigus and pemphigoid.

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