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A Look Back at UNC Dental Day 2018

On October 12, 2018, I participated in the IPPF Dental Day as part of the 2018 Patient Education Conference. Dental Day...

August 6, 2019Patrick Dunn

Ellen Levine Receives Harvard Medical School Dean’s Community Service Award

The IPPF is excited to announce that Ellen Levine, IPPF Patient Educator and pemphigus vulgaris (PV) patient, received the Harvard Medical...

June 25, 2019Patrick Dunn

The IPPF Receives Grant from Sy Syms Foundation to Accelerate Diagnosis Times

The Sy Syms Foundation has awarded a $100,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the...

June 19, 2019Patrick Dunn

Rituxan Shown as Superior in Achieving Sustained PV Remission

Genentech announced this week that positive top line results from the Roche-sponsored Phase III PEMPHIX study evaluating the efficacy and safety...

June 13, 2019Patrick Dunn

NORD and Trio Health Publish New Book to Provide Critical Patient Insights Into the Burden of Living With and Treating Rare Diseases

As a NORD IAMRARE™ Registry Partner, the IPPF is proud to share that a new book, “The Power of Patients: Informing...

June 3, 2019Patrick Dunn

Akari Therapeutics Announces Positive Initial Phase II Clinical Data in Orphan Skin Disease Bullous Pemphigoid

On April 23, 2019, Akari Therapeutics, Plc (Nasdaq: AKTX), a biopharmaceutical company focused on innovative therapeutics to treat orphan autoimmune and...

May 23, 2019Patrick Dunn

European Commission Approves Roche’s MabThera (rituximab) for Pemphigus Vulgaris

On March 15, 2019,  Roche announced that the European Commission has approved MabThera® (rituximab) for the treatment of adults with moderate...

March 15, 2019Patrick Dunn

Principia Biopharma Announces Positive Data From Phase 2 Pemphigus Vulgaris Trial at 2019 American Academy of Dermatology Annual Meeting in Late-Breaking Presentation

On March 2, 2019, Principia Biopharma Inc. (Nasdaq: PRNB), a late-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients with...

March 4, 2019Patrick Dunn

Principia Biopharma Announces the Acceptance of Data from Phase 2 Pemphigus Vulgaris Trial as a Late-Breaking Presentation at 2019 American Academy of Dermatology Meeting

On February 22, 2019,  Principia Biopharma Inc. (Nasdaq: PRNB), a late-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients...

February 25, 2019Patrick Dunn

IPPF 2018 Year in Review

2018 was an exciting year for the IPPF!

January 25, 2019Patrick Dunn

Breaking Bad: IgG4 in Autoimmunity

Our laboratory researches a rare and debilitating autoantibody-mediated disease called pemphigus vulgaris, in which the immune system generates antibodies against desmogleins,...

January 18, 2019Patrick Dunn

Syntimmune Announces FDA Orphan Drug Designation for SYNT001 in Treatment of Pemphigus

On September 12, 2018, the U.S. Food and Drug Administration (FDA) granted an orphan drug designation to Syntimmune Inc.’s SYNT001 for...

January 11, 2019Patrick Dunn

2018 Highlight: Patient Education Conference

The 2018 IPPF Patient Education Conference was an amazing opportunity for patients and their support systems to not only have direct...

January 9, 2019Rebecca Strong

Principia Biopharma Reports Positive PRN1008 Phase 2 Top-Line Results and Initiates Phase 3 Pemphigus Program

Principia Biopharma Inc. (Nasdaq: PRNB), a clinical-stage biopharmaceutical company dedicated to bringing transformative oral therapies to patients with significant unmet medical...

November 30, 2018Patrick Dunn

Aimee Payne and Nicola Mason Receive NIH Award

Transformative Research Award Will Support Further Pemphigus Research Nicola J. Mason, BVetMed, PhD, associate professor of Medicine and Pathobiology at the...

November 15, 2018Patrick Dunn

Bertilimumab Granted Fast Track Designation for the Treatment of Bullous Pemphigoid

The U.S. Food and Drug Administration (FDA) has granted Fast Track Designation to bertilimumab for the treatment of bullous pemphigoid. The...

September 11, 2018Patrick Dunn
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The IPPF Receives Grant from Sy Syms Foundation to Reduce Diagnostic Delays

The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the...

August 24, 2018Patrick Dunn
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Bertilimumab Granted Orphan Drug Designation for the Treatment of Bullous Pemphigoid

The U.S. Food and Drug Administration (FDA) has granted Orphan Drug Designation to bertilimumab for the treatment of bullous pemphigoid.

August 20, 2018Patrick Dunn
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Self-Care: Comfort Techniques and Dressings

Pemphigus and pemphigoid (P/P) patients may agree that in the early months of their condition it is a very painful and...

July 17, 2018Patrick Dunn
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Rituxan Receives FDA Approval to Treat Pemphigus Vulgaris

On Thursday, June 7th, the FDA approved Rituxan for the treatment of adults with moderate to severe pemphigus vulgaris (PV). Rituxan...

June 15, 2018Patrick Dunn

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