Syntimmune recently announced positive preliminary results from its phase 1b proof-of-concept trial of SYNT001 in pemphigus vulgaris and foliaceus patients. It’s...
It can be difficult to accept the news of a lifelong chronic disease. It may be easier to understand the diagnosis...
Even if you don’t have a medical condition, it’s always wise to have your medical information accessible ICE (In Case of...
Genentech recently announced an important FDA decision that could potentially impact future treatment options for pemphigus. Here at the IPPF, it’s...
The IPPF had the pleasure of interviewing Lindsey Horan, AADR’s Assistant Director of Government Affairs about their 2018 Advocacy Day and...
Now that you know what you have been diagnosed with, it is important that all of the doctors who treat you...
We had a great 2017 with your help!
You don’t have to be a Navy SEAL, firefighter, or an NFL football player to be resilient. Resilience is a common...
Having a rare autoimmune disease is scary. Once you receive a diagnosis by a dermatologist experienced in treating pemphigus, it’s advisable...
In a disease such as Pemphigoid, where the cause and pathogenesis is unclear and treatments are often trial-and-error, any “leg up”...
For the past four years, I have joined IPPF patients and others in the rare disease community across the country in...
In January 2013 my husband was diagnosed with prostate cancer. Thankfully, after surgery he was cancer free. But in May 2015...
It wasn’t easy getting to this meeting. After a four-hour train ride, I decided to walk to my hotel, nearly two...
It started with a vision to make more people aware of pemphigus and pemphigoid (P/P). Those following the IPPF Awareness Campaign...
My name is Rudy Soto. I am from the great state of Texas and have lived there all of my life....
On Saturday, February 4th, the Mid-Atlantic Support Group held its first meeting in Stafford, VA, with 10 new members attending. This...
The IPPF had another great year in 2016. Here are a few highlights:
The International Pemphigus and Pemphigoid Foundation (IPPF) is pleased to announce the availability of a seed grant program to encourage and...
Rare Disease Day is a day of unity for us patients with rare diseases. I can’t speak for you, but I...
Last year was shaping up to be a very important year. I had just gotten an associate degree in journalism and...