When there was an opportunity to be an advocate, Marc suggested that I attend Rare Disease Week in Washington, DC. My...
The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the...
If you cannot work enough to earn the SSA’s monthly Substantial Gainful Activity (SGA) limit of $1,130, then you may be...
As we shared our stories on behalf of the entire P/P community, I could see that many of the legislators’ offices...
The biggest problem with dental implants in pemphigus and pemphigoid (P/P) patients is that P/P are often treated with corticosteroids or...
Marlis Lippow was diagnosed with pemphigus vulgaris in February of 2014. She recently participated in a clinical study and shares...
Over $10 billion in employer matching donations go unclaimed each year. The IPPF donation page allows you to search and see...
The purpose of advocating in Washington, DC is to spread awareness and lobby for favorable legislation that affects the entire IPPF...
It's no secret among the pemphigus and pemphigoid (P/P) community that treatments to help these rare diseases are not always ideal....
Monday, February 29, 2016, was "Leap Day," the rarest day of the year. But for the rare disease community, it was...
In November 2014, I used the chemotherapy drug Rituxan off-label for my rare disease, Immune Thrombocytopenia (ITP). The decision was made...
Conferences are an excellent way for us to meet dental professionals and spread awareness of P/P and the IPPF. In November,...
Pemphigus and pemphigoid are very patient-specific diseases. Everyone's disease activity varies. Well, the same thing goes for diet and these diseases....
On the last day of February millions of people around the world will observe Rare Disease Day. Get involved by visiting...
The First Amendment to the United States Constitution guarantees the right of all citizens to communicate with their elected officials. So...
If you suffer oral lesions, how can you partner with your dental health care provider to come up with a definitive...
When the email landed in my inbox last month asking for pemphigus and pemphigoid patients and caregivers to advocate on Capitol...
Recently, the Awareness Campaign was an exhibitor at the American Dental Association’s (ADA) Annual Meeting in Washington, DC from 11/5-11/10 and...
For those of you who have any one of the pemphigus/pemphigoid (P/P) related skin diseases, stress is the number one factor...
As the holidays approach and 2015 draws to a close, the International Pemphigus and Pemphigoid Foundation has much to reflect upon...