The end of the year is a great time to look back at our programs and assess the progress we've made...
Pemphigoid Gestationis is a rare autoimmune blistering skin disorder that affects an estimated 1 in 40,000-50,000 pregnancies in the United States...
The IPPF appreciates the generosity of each and every dollar we receive, and we allocate donated funds in a responsible manner....
The 2016 Patient Conference has already come and gone. It was an amazing experience for attendees and presenters alike. This year’s...
For pemphigus and pemphigoid patients, there are several events that can trigger stress and exacerbate disease activity, even simply being diagnosed...
Although there has been a huge public outcry over the cost of prescription drugs, there has been little public discussion about...
Working for the IPPF has been something I have been interested in doing for about five years, since my pemphigus vulgaris...
In addition to our general request for NIH funding, I stressed the importance of cutting edge research on rare diseases and...
In the beginning of treating a bullous skin disease like pemphigus, prednisone is usually prescribed. A high dosage over time, can be...
This year’s conference promises to be one of our best yet as we are highlighting the most recent research advances in...
"This exciting aspect is why CAR-T cells were named by the director of the NIH and Vice President Joe Biden as...
Since its inception, the IPPF has had a strong commitment to advocacy. Our goal has been to promote favorable government policies...
During the summer recess, Congress returns to their home states to hear from constituents and attend community events. Meeting with them...
Sharon Williamson’s journey to a pemphigoid diagnosis started in July of 2014 when her mouth began to bleed whenever she brushed...
You have heard this message time and time again: It’s important for family caregivers to take care of their own health...
While working as a Peer Health Coach, I’ve had the pleasure of speaking with many P/P patients. Creating those relationships has...
Although the scalp can be frequently involved with pemphigus/pemphigoid, associated hair loss has only rarely been described. In one case, treatment...
When there was an opportunity to be an advocate, Marc suggested that I attend Rare Disease Week in Washington, DC. My...
The Sy Syms Foundation has awarded a $75,000 grant to the International Pemphigus & Pemphigoid Foundation (IPPF) in support of the...
If you cannot work enough to earn the SSA’s monthly Substantial Gainful Activity (SGA) limit of $1,130, then you may be...