I am neither brave nor eloquent with words but the knowledge that I could encourage the passage of bills to find...
Dealing with insurance is not fun, especially when you’re in pain, and don’t know what the future holds. My experience has...
Most individuals have a primary care physician. Many have a dentist. Many women have an OB/GYN for women’s health. There are...
Since Becky Strong gave the first IPPF Patient Educator presentation at the University of Michigan in March of 2014, she and...
The IPPF strives to do many things for the pemphigus and pemphigoid community, but our three biggest goals are to raise...
Tuesday, December 1, 2015, is #GivingTuesday, a day the world will come together to support nonprofit organizations and their missions. #GivingTuesday...
On September 26th Todd Kuh and Mariah Lowinske, two patient advocates with Pemphigus Vulgaris, and I attended the American Academy of...
In a previous Coaches Corner I have given prednisone tips. It is a good time now for an update as there...
As a Patient Educator for the IPPF, I have the fantastic opportunity to travel around the country to different dental schools...
Chances are you have wondered why there are not more treatments available for pemphigus and pemphigoid, or at minimum, why there...
The IPPF has maintained a "News and Information" section for many years. The launch of PemPress signals a new era in...
After months of uncertainty waiting for a diagnosis and finally finding a physician who can treat your rare skin disease, you...
Pemphigus and pemphigoid (P/P) can take a long time to improve or reach remission. The process can take months or even...
This article is meant for those of you who have recently or about to move to a new area. After living...
Having a rare disease like pemphigus or pemphigoid can make you feel like you have lost control of your life. After...
Living with a bullous skin disease is a challenge in more ways than one. In addition to taking medication we also...
Studies have shown that there is a mind-body connection. It is known that stress can cause headaches, muscle aches, tummy aches,...
Deciding whether you should continue working or go on Social Security Disability is a tough decision. It can add to your...
Preparing for your doctor’s appointment can help you get the most from your visit. Taking an active role in your care...
When you decide to take a trip outside of the state where you live it is a wise idea to make sure...